When I
held this child in my arms for the first time, I never thought that I would see
him in handcuffs. I never thought he
would use drugs. I never thought I would
have to put him in a rehab facility. I
never thought I would hear doctors and therapists suggest diagnoses like attachment
disorder, oppositional defiant disorder, below average brain processing speed, depression,
psychosis, explosive personality disorder, and bi-polar disorder. I never thought he would spend time in a
psych unit.
At the
same time that my son was freaking out in my home, beating holes in my door,
and fighting with my husband, there was a terrible school shooting in one of the
eastern states. And, the sad thing about
that in my own life was that I couldn’t say for sure that my son wouldn’t ever attempt
something like that. When he is raging, he is totally out of control and
doesn’t think about anything but the fact that he will do anything to get the
results that he is after. You just don’t
know what it is like to see your son beat a hole through your door and then
fight with your husband, who is just trying to restrain him. I had no idea what lengths he would go to if
he thought he was being treated unfairly by us, his parents, or the world in
general. It was awful that I even had
those thoughts, but I had no idea what was going on in my son’s head.
He was
given ten days by the insurance company for the doctors and therapists at the
psych unit to try to figure it out. We
were lucky to get them to allow ten days.
At first, they were only willing to let him stay for five days, which
would have been ridiculous. He was
rebellious and un-cooperative for the first five days as it was.
The first
thing that his therapist, Fred, said to me was, “You have one stubborn son.”
I said, “No,
I have one REALLY stubborn son.” And he
laughed and agreed with me. He expressed
empathy and compassion for what we were going through and for that fact that
nothing we had tried in the past had helped. He let us know that in ten
short days, we would be lucky to make any kind of breakthrough.
Family
therapy sessions were tough. For two or three days, our son was uncommunicative and sullen. The only thing he said to us was, "Will you bring me some of my own clothes? I am tired of wearing someone else's pants." Even after those first three days, he would not speak to me
or my husband unless he absolutely had to.
Then, he started “playing the game” with Fred, saying exactly what he thought
Fred wanted to hear. I expressed concern
about that and he said that he knew what my son was doing and knew
how to handle the behavior. When playing the game didn’t get immediate results—going home and getting his X-Box back—my son started
trying to manipulate me by promising to do all of the things that were on the
list that he had previously sworn he would never do.
Fred was
amazing and didn’t let us fall for anything that our son tried to pull. He was trying to make my son take
responsibility for himself and for his actions and not blame us for everything
that was happening to him.
The
psychiatrist (I will call him Dr. Smith) spent a lot of time with my son and
after a few days told us that he was going to prescribe a new medication to
help calm my son down. This was one of the
breakthroughs that I was looking for. When
I researched the new medication online, I saw that this particular medication
was generally prescribed for bi-polar disorder.
Bi-polar
disorder! I had been asking doctors for
over two years if my son had a type of bi-polar disorder. His mood swings were rapid and cycling and I
could often tell when an episode was going to end up in out of control
behavior. My concern was always just
brushed off and I was told, “No, he is not bi-polar.” And that was it.
During that week of peace and quiet at home, I went
to see a movie about a young adult with
bi-polar disorder, who left a psychiatric hospital to go back home to live with
his parents. He didn’t like to take his
medication and he had raging episodes similar to the ones that my son has. It was interesting to see an episode
portrayed on a movie screen, although the rages portrayed in those scenes were
extremely MILD compared to the raging episodes that we experience in our home.
So, for
me, it was validating to know that a doctor had put two and two together to
come up with the same feelings about an aspect of my son’s mental condition that I had been
having.
This
diagnosis could have the potential to be life-changing for him and for us as a
family.
We went
back every day during the week to meet with the therapist and psychiatrist,
followed by family therapy with our son.
Each time we met with them, they would shake their heads and empathize
with us about how hard it was to deal with our son. It did not seem like any progress was being
made. He still wouldn’t talk to us. He still played the game with them. And, he didn’t want to try to let them help
him. Every time they asked him questions
about his behavior or choices he would say, “Because, I am bored. Because, I don’t have anything in my life
that I find enjoyable. Nothing that I
used to do is fun anymore. No matter
what I try I can’t find anything to do.”
And they responded with the question, “When you make the decision to be bored and to stop
trying to have fun, how does that benefit you?”
He wouldn’t answer them.
As we
drew closer to the end of the week, even though nothing had really changed, the
next step was for our son to come up with a Safety Plan for what he was willing
to do to keep himself and the family safe when he came home. He was supposed to decide on certain behaviors,
expectations, and consequences. Fred
felt that it would work out better for us if our son made the plan because then
he couldn’t say, “That’s not what I agreed to do, so I don’t have to do
it.” But, he refused to try, to listen,
or to give-in on anything. Sometimes, Fred
was just dumbfounded as he saw how unreasonable my son could be.
He would
send our son out of the room and give us counsel about things that we, as
parents, needed to do when he came home.
He said that we should give him his X-Box back, even though we didn’t
want to. According to him, when we take something
away, indefinitely, in our son's mind, it is the end of the world, life
is over, and he will NEVER be able to get what he lost back. He said that if we feel that we need to take
something away from him, we should take it away for a maximum of two days.
He also
recommended that we put a door back on his room, since we had taken his door
off when he smoked marijuana in there.
I was only willing to give him the door with the big hole in it and the Fred thought that was a great idea. When he presented that idea to my son, his response
was, “Fine with me. As long as they like
hearing my TV blast loudly all night.”
To which Fred forcefully stated, “You WILL NOT be doing that. Being disrespectful in that manner is not
going along with the right to live in your parent’s house!”
Of
course, the rebuttal to that was, “I don’t want to live there anyway!” And he began to spin everything in that
direction again.
Everything
just went around and around. We weren’t
getting anywhere and were at our wits end.
What would we do after the weekend was over and he came back home?
We had just played our Psych Unit card, so
what would our next course of action be if things got out of control again?
As the weekend approached, he suddenly began to cooperate and came up with ideas for his Safety
Plan, thinking that if he did what was expected at the last minute, he wouldn’t
have to stay any longer. When he asked
me if he could go home with us that night, Fred said, “It is not up to your
parents. This decision is not in their
control. I will confer with Dr. Smith
and we will determine whether you can go home after the weekend is over, or
not.” My son began to cry and begged, “Please
don’t make me stay here. It is so f-n
boring that I can’t stand it.”
I hated
to see him cry. I hated that he was
going through this and that WE were all going through this. I had certainly shed my share of tears. I knew he was not having a good time there,
but I also knew that I wasn’t ready for him to come home yet.
So, of
course he got angry and went back to his sulking mood saying again that he didn’t ever want to come home with us and would rather go anywhere else than to our
home. Fred told us that we might as well
leave and he would continue to try to get through to our son for awhile that
night.
During
their discussion, Fred told him, “if I let you go home on Tuesday, you need to
know that you will be going back to high school and that if you screw up at
all, in any way, you will be put in residential treatment, immediately. There will be a standing order waiting for
you. And, if it was my decision, alone, I would put you in
residential treatment right now because you aren’t showing me that you have
learned a thing in the last week that you have been here.”
The only
thing my son took from that statement were the words, “Residential Treatment.” I received a phone call from our son a while
later and he began begging me to say that if he was good all weekend, would I
make sure that he didn’t have to go into residential treatment next week?
I just
told him that I wasn’t going to commit to anything and that I couldn’t make any
decisions, say yes, or say no to anything without his Dad, the therapist, and
the psychiatrist’s input. He hung
up on me.
Five
minutes later, a staff member called back and said that our son wanted to talk
to me again. My husband told him that I
wouldn’t talk to my son if he was just going to get angry when he didn’t get
the answers that he wanted and hang up on me again. The staff member talked to our son, then put him
on the line. He asked us to come and see
him the next night (there was no family therapy on weekends). I agreed, but reiterated that I would not
answer any questions about his release date or his future and that if he
started to pester me, I would just leave.
10
minutes after that, Fred called and told me that he wished he knew what was
misfiring in my son’s brain that quickly turns a good situation into a bad one and causes everything to blow up, but he didn’t know what it was. He wished that our insurance company would
let him go into residential treatment, but he knew that it wasn’t a likely option. He said that he should have left work several hours ago but was trying valiantly to make some progress with our son. Even though he wasn’t supposed to work the next day, he said he was going to go to the morning meeting and fill everyone in about our son and try
to figure out what to do with him. I
have never known any doctor or therapist who worked as hard to help our family
as Fred did in that short time. I will always be grateful
for all of the extra time that he spent with us. I wished we could have continued therapy with
him on the outside because he has been the only person who seemed to be able to
see past the games and the acting and try to get to the root of the problem.
At the end of our
weekend visit with our son, where we brought him fast food and played Uno, he
actually initiated and gave me and my husband hugs when it was time for us to
leave. Wow!
We had
a fairly good time with him, but part of me didn’t trust that. How would I know that it wasn’t just part of
the act that he puts on to try to get his way?
But, then again, maybe a week in the psych unit taught him that it wasn’t
as bad at home as he thought it was.
On
Monday, I found out that no matter what argument or diagnosis or reason that
Fred and Dr. Smith had for putting our son in residential treatment, the
insurance company would not budge and would not cover a stay in the
facility, or even Day Treatment. It made me upset that our
health insurance, which we had not downgraded or changed in anyway in the last
three years, no longer covers any residential or day treatment for mental
health or substance abuse. Somehow they
secretly red-lined that coverage without our knowing it. Nothing was said about that change in
coverage when we renewed at higher and higher rates every year.
The
honeymoon period of good weekend behavior was certainly over on Monday
night. Once our son found out he wasn’t
going to residential treatment, he was ready to be a jerk again. He didn’t know that it was not allowed by the
insurance company, he just knew that he wasn’t going at that point. But, Fred did his best to put a stop to the
rotten attitude by telling our son that if he didn’t shut up and listen and let
us come up with a plan, he was going to change his mind about discharging him the next day.
The hour
was over way too quickly and he sent our son out of the room to give us a last few
minutes of reassurance and advice.
He hoped that our son would follow the rules and everything that we were
working on for the Safety Plan, but he had reservations and he told us…”This is off the record. I will deny that I ever said this to
you. But, you do have a choice
tomorrow. If you choose not to come and
pick him up, he will become a ward of the state. You will be charged with abandonment, but with
all that you have gone through, and all of the information that we can release from the records of his stay here, it won’t be that bad for you and you won’t
have to deal with him anymore. I can say
that I would not think badly of you if you did this. I don’t know if anything that we have done
here in the last week has helped him and I don’t want to send you home with the idea that things have been fixed because they probably haven't been.”
I almost started to cry as he was talking. How could I possibly do that? Would I ever really be at that point?
I asked
Fred if we could meet again for awhile before I took my son home the next day and
he said, “Yes, I think we should.” He set it up for 1:00 p.m. and I said, “Are
you blocking out 3 hours?” He laughed
and said he thought we would probably need that much, knowing us. Then, he sent us to a room with our son to
try to finish the going-home plan without his assistance, since we hadn’t made
enough progress on it during our session.
Our Safety Plan
turned out to be different than the one that Fred was suggesting, but we had to get our son to agree to something, so we took what we could get. And then, he actually hugged us again when we left.
That
night, I either got the stomach-flu or food poisoning or both. I was so sick all night long. The next morning, I had to go check my son out of the
psych unit alone because my husband couldn’t miss work. I don't know how I managed it, but I pretended that I wasn’t sick the
whole time that I was at the facility.
Fred
told me that if we have to go through this again, he would make sure that he was
our son’s therapist and that he would do everything in his power to make sure
that if necessary (and because it was the last resort) our son would get admitted to the State Mental Hospital.
I had just been wondering why anyone hadn’t
ever mentioned the State Hospital and was glad to have him alleviate my fears about having no other options.
He powered through everything again with my
son about what was expected of him at home. My son was quietly submissive and agreed to comply with everything.
I was terrified to take him home. I knew that my son still felt that everything that had happened was not his fault and blamed us for all of it. I was so sick and felt so awful that I knew I could not handle it if he freaked out when we got home.
I let him know that I planned on going straight to bed when we got home and he said he intended to immediately begin playing the X-Box. But, surprisingly, he asked me
what chore I wanted him to do first. And, he did one.
That was unexpected.
Maybe things
were going to be okay.
Yeah, right…..maybe.